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Turtle Steps: Noah's Progress @ 15 months
Milestones...Inchstones...Baby Steps...Turtle Steps.....The second I find myself disappointing because Noah has not been able to figure something out, or learned how to do something on his own, I take...
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Oral Adventure:Feeding and other Oral Aversions
Our Salty Sweet Battle against Oral Aversion, Calorie Intake, Tube weaning, and Proper Digestion I have mentioned this many times but our top two battles right now with Noah are his low body tone and...
View ArticleNoah's Therapy Video at Now I Can
Noah completed his first session at an Intensive Therapy Clinic called Now I Can Foundation. This clinic is located in Orem, Utah. We completed a 3 week Monday-Friday, 4 hour a day session and in...
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Oral Adventure: Part 2 (food/bottle/cup suggestions)
You know when you write something and you feel like you have covered all the bases but then a couple days later you realize you missed some pretty substantial points...well that is what happened so I...
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Noah Rolled Over!!!!
Yesterday when I was getting ready for our PT to visit I had put Noah on his back in the middle of our front room. He wasn't propped on anything and in fact I put him directly on the carpet because...
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A Baby No More
...a post heading that sounds more like the title to a Lifetime channel Movie than a pivotal moment that I have been dreading...but it did happen...and I found myself casually walking into our half...
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First Stranger Comment: follow up to my last post
Who knew it would happen so fast, but it did, and I finally found out what I am made of (sugar or spice). Sugar won :)Day: Mother's Day 2013Time: 11:00amLocation:...
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Adenoidectomy+Frenectomy = (G-tube minus Ng-Tube)
Adorable as ever noogie and all On 4/30/13 Noah went into his first surgery. Surprisingly this was his first actual surgery even though he has been in hospitals and doctor offices every single month...
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hoS(PIT)heLl
Dear whomever runs all things medical in this universe,Enough is enough! Yep...I said it....we are done! I would like to go into details about all the hospital chairs we have sat in and all the...
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Noah was featured in an article
The MAGIC foundation asked me to write an article about Noah for their summer newsletter. You have to subscribe to be able to read the entire newsletter (all proceeds benefit the foundation and their...
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G-tube: Hydration & Nutrition
Happy Little GuyFood and Water. Two things every human needs in order to survive. As a parent providing for their child, keeping them well nourished and hydrated is the primary responsibility from...
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Double Ear Infections=a Milestone????
Sick little BobalooIt started about 9 days ago when I noticed Noah was sleeping more. He normally stays awake until 7-8pm but was falling soundly asleep around 5pm and I couldn't keep him awake. I...
View ArticleTo Those Who Chose
This is my unofficial disclaimer to those moms and dads who share 50% of the same DNA as their Special Needs child(ren). This post is different. This post has a very specific audience that I would...
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Blended Diet: Bye Bye Formula
compare to a tiny appleNoah's eating has been a yo-yo of a journey as you all know. He started out on breast milk, then was drastically switched to formula. He was introduced baby food around 4.5...
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Blended Diet Part 2: How we got started
We Choose REAL FOOD!!!This post will go into detail about how we started our Blended Diet and the steps that followed. A pretty technical post that may bore those who are not looking to start this...
View ArticleMystery Diagnosis
If you have ever found yourself wide awake into the wee hours of the night you might have come across a television show called Mystery Diagnosis. One of those shows that seems to suck me in within 30...
View ArticleNeuroworx
This is a video created by Neuroworx for a gala they held in September 2013. I was fortunate to be able to volunteer for this wonderful event. Furthermore, my son Noah who is a patient at Neuroworx,...
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Two Years Old (or in medical terms 27 mo. 10 days)
Where have we been? How is Noah doing? How are we doing?Summary of our past six months:Life happened...plain and simple. We have had some horrible hospital stays and we have had some amazing...
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FireFly GoTo 2 Seat: My Review
I had waited what seems like forever for the FireFly GoTo 2 seat to come out. They previously had the smaller version available but Noah was right on the cusp of being too big for it. Paying the...
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DIY Therapy Trampoline
I would first like to state that this is completely a DIY project and that you alone are responsible for the outcome of your own device and whatever means you used to create it with. I am by no means...
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Noah is THREE!!!
Big Brother Noah with his baby sisters Maddy and EllieWe have a Preschooler...yikes!Where have we been? How is Noah doing? How are we doing?Summary of our past six months:Due to lack of time and...
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Products: Our thoughts for our Noah
Our thoughts on different products we have tried, bought, or used for Noah. Please note this is only our thoughts about products for our son only and his disabilities. Most of these items we...
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Spring Swing
When you have an immobile toddler you tend to get creative when trying to find new and exciting ways to entertain them. Bonus points if you can turn it into some form of therapy exercise, and double...
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Time is Relative & Differences will be Noticed
Time is relative. This year I have figured out just how true that statement is. It has been nearly four years since Noah was born, Maddy and Ellie just turned one two weeks ago, when the “witching...
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Almost 4 "It Gets Easier" - A Mothers Experience
What I have learned now that I have four years to look back and evaluate how I got to today. Were once I was the student I find myself now the slightly-more-seasoned-teacher. I learned what works and...
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